What is a Seizure Diary?
A seizure diary is a record of when seizures occur, and what happened during the attack. These can be recorded on any diary, spreadsheet or calendar (e.g. Google or a free "Gus' Pet Wash" promotional calendar). I have offered some basic requirements for a diary and links to sites with ready-made templates for seizure diaries. I welcome recommendatons and reviews! Dr. Rotenberg, Houston TX
What to record
In their simplest form, they consist of a "count" of seizures within a day, week, or month, which will let your doctor calculate the seizure frequency. More sophisticated diaries, however, can include information about other factors as well:
- Date and time the seizure began
- Any warning signs, or clues that the seizure was coming on
- how long the seizure lasted
- what happened during the seizure
- Any triggers that were noted or suspected
- Names and dosages of daily medicines
- Names and dosages of any rescue treatment that was required
- Whether any medication doses were forgotten
- Anything unusual or atypical about the seizure
http://www.epilepsy.com/seizurediary - links to a FREE iphone app for a seizure diary
http://seizurediary.org/ - Many types of diaries in pdf form. Includes forms for infantile spasms.
http://www.epilepsysociety.org.uk/AboutEpilepsy/Whatisepilepsy/Seizures/Seizurediaries From the UK a pdf formdiary
http://www.growingstrong.org/epilepsy/diary.html - A basic diary in excel form.
Nice sites sponsored by the makers of anticonvulsants -
From UCB there is a site on preparing for a physician visit. There is a detailed history form with a short diary -
http://www.keppraxr.com/neurologist/preparing.aspx
From Eisai http://www.banzel.com/Support/SeizureDiary.aspx
http://www.lundbeckshare.com/pg420_seizure_diary.aspx - From Lundbeck
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