Monday, April 27, 2015

App offers non-medication treatment for ADD/ADHD

An app created in Israel offers a medication-free alternative treatment for children with ADD and ADHD.

Aziz Kaddan, one of the co-founders of Myndlift, didn’t flinch when asked in front of an audience at the recent BrainTech conference in Tel Aviv how he plans to go up against the better-funded American companies with his alternative non-drug treatment for attention deficit disorder (ADD) and attention deficit hyperactivity disorder (ADHD).
Myndlift uses neurofeedback, also known as electroencephalographic (EEG) biofeedback, to train the brain to focus. It’s a computer-based technique developed and tested by NASA to improve attention, focus, and learning. Kaddan, the 22-year-old phenom taking Israel’s brain-tech world by storm, knows the path to changing hyperactivity treatment is a tough one, but he’s positive his app-based, wearable neurofeedback solution, coupled with specially tailored mobile games that only work through concentration, can increase attention levels with just 10 minutes of play time a day.
“I know that I have a product that has a value to a lot of people,” he said, from his co-working space for high-tech entrepreneurship and innovation at Tel Aviv’s public library. Myndlift’s idea is to get sufferers of ADD and ADHD off medications like Ritalin, which suppresses appetite and has other negative side effects, and help them focus their minds using a mobile app, neurofeedback, and a brain-sensing wearable technology.
“Myndlift brings personalized neurofeedback training to mobile, making it easier for people with hyperactivity, professionals in demanding careers, students, athletes and anyone concerned about brain fitness to improve concentration abilities effectively without prescription drugs, inconvenience to visit specialized clinics and huge bills, thus saving thousands of dollars and tens of commuting hours,” according to the company’s elevator pitch.
Read more here

Sunday, April 26, 2015

Houston Reisbord BBYO Supports Houston TIRR Hotwheels

May 17 from 12pm-5pm we will host our Third Annual Wheelchair Basketball Tournament to support the chapter and the Houston Hotwheels. The event will bring together able-bodied and disabled teens for a fun day of competition. 

So lets all reach out to our family and friends and raise fund and make teams!  

Reisbord Supports Houston TIRR Hotwheels

TIRR Memorial Hermann Hotwheels was founded in 1997, first competing in the 1997-98 basketball season with only five players. As the seasons have continued we have had over 75 wheelchair athletes participate on the Hotwheels basketball team.
Five players from the 2007 TIRR Memorial Hermann Hotwheels team were awarded scholarships to colleges with collegiate wheelchair teams and are continuing to play the sport they love on a college level. One member from the 2009 Hotwheels team continued his basketball career with a scholarship to University of Texas in Arlington and another was selected to the residency program at the US Olympic Training Center in Denver, CO for swimming. A senior on the 2010-2011 team was offered a full athletic scholarship to the University of Texas in Arlington. In 2011-2012, a senior was offered a spot with the University of Illinois fighting Illini Ladies wheelchair basketball team.

Wednesday, April 22, 2015

Attention Texas Parents of Children with Disabilities - Make Your Voice Heard - inventory of postsecondary educational programs and services for persons with intellectual and developmental disabilities

Attention Texas Parents of Children with Disabilities - Make Your Voice Heard on a bill in the state house. Inventory of postsecondary educational programs and services for persons with intellectual and developmental disabilities  - JR

DEVELOPMENTAL DISABILITIES. (a) The board shall maintain an
inventory of all postsecondary educational programs and services
provided for persons with intellectual and developmental
disabilities by institutions of higher education.
       (b)  The board shall:
             (1)  post the inventory on the board's Internet website
in an easily identifiable and accessible location;
             (2)  submit the inventory to the Texas Education Agency
for inclusion in the transition and employment guide under Section
29.0112; and 
             (3)  update the inventory at least once every two
       (c)  At times prescribed by the board, each institution of
higher education shall report to the board all programs and
services described by Subsection (a) provided by that institution.


Spectrum: Partisan Bill (Democrat 1-0)
Status: Introduced on February 23 2015 - 25% progression
Action: 2015-04-22 - Scheduled for public hearing on . . .
Pending: House Higher Education Committee
Hearing: April 22, 2015 @ 08:00 AM in E2.014
Text: Latest bill text (Introduced) [HTML]


Relating to requiring the Texas Higher Education Coordinating Board to maintain an inventory of postsecondary educational programs and services for persons with intellectual and developmental disabilities.

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Relating to requiring the Texas Higher Education Coordinating Board to maintain an inventory of postsecondary educational programs and services for persons with intellectual and developmental disabilities.



2015-04-22HouseScheduled for public hearing on . . .
2015-03-12HouseReferred to Higher Education
2015-03-12HouseRead first time


Texas State Sources

Sunday, April 19, 2015

Houston Area Ataxia Support Group Meeting for Adults, Children and Families is a grass roots group that shares experience and information. 1/1 pediatric neurologists in my house can say from experience that you / your child are highly likely to benefit from the shared knowledge....
and, there are no side effects. - JR


Sunday, April 26, 2015
2:00 PM to 4:00 PM
New Location:   The Women’s Hospital of Texas
Classroom 107, 7800 Fannin St
Houston, TX 77054 

Plenty of Parking
Valet Parking is available (optional)
Meeting Agenda:
Safety Moment and Facility Orientation
Meet & Greet
Update from Bonnie Sills on the National Conference held in Denver
Dr Partha Sarkar, Researcher at UTMB Galveston

Family, friends, and caregivers are welcome! An RSVP is appreciated.

To RSVP, more information, or to be added to the mailing list for this group please contact
Bonnie Sills at (713) 944-5183 or David Brunnert at (713) 578-0607

We are stronger together!

Home test can diagnose sleep apnea in children

Of course this is interesting, but consider the importance of sleep studies in kids is not just to find evidence of sleep apnea. We need to identify those who have severe apnea to know who is at medical risk of complications from surgery.  

This is why the AAP recommends a sleep study BEFORE tonsillectomy.

Note that the agreement was higher in the lab for the same device. So..can you trust the results at home?

I dont like "probably" as an answer.

So, if its positive, a child needs a psg ...and..if its negative, the child needs a psg. 

Bottom line: kids are different than adults....JR

A respiratory polygraphy test that can be administered at home accurately diagnoses children with sleep apnea.

The use of home respiratory polygraphy to diagnose children with sleep apnea was reliable and comparable to the results of polysomnography and an in-laboratory respiratory polygraphy, according to study results.

‘This study shows that [home respiratory polygraphy (HRP)] provides a reasonably valid alternative to [in-laboratory polysomnography (PSG)] for the diagnosis of [obstructive sleep apnea-hypopnea syndrome (OSAS)] in children clinically referred with a high index of clinical suspicion for the presence of OSAS,” María Luz Alonso-Álvarez, MD, of the Hospital Universitario de Burgos in Spain, and colleagues wrote. “This frequent and highly prevalent pediatric condition is associated with adverse consequences and excessive and costly use of health care services.”
The researchers conducted a prospective, blinded study on 50 randomly selected children (mean age, 5.3 years) being evaluated for clinical suspicion of OSAS. Participants were given an HRP and within 2 weeks a simultaneousPSG and in-laboratory respiratory polygraphy (LRP).
Sixty-six percent of the children were diagnosed with OSAS based on a PSG-defined obstructive respiratory disturbance index (ORDI) of at least three events per hour during sleep.
Using the interclass correlation coefficient, ORDI agreement between PSG and LRP (ORDI = 96.5; 95% CI, 92.3-98.2) as well as HRP (ORDI = 86.7; 95% CI, 76.5-92.5) was greater than 80% in all cases but higher for LRP than HRP.
The researchers emphasized the importance and validity of using HRP in the diagnoses of children suspected of having OSAS, namely reduced cost and the comfort of home testing.
“We should stress, however, that when inconclusive HRP findings occur, a conventional PSG should be performed, and we further recommend incremental research efforts, particularly for the mild diagnosis of OSA using HRP in children,” the researchers wrote.
Read more here

Saturday, April 18, 2015

Therapy of encephalopathy with status epilepticus during sleep (ESES/CSWS syndrome): an update.

Epileptic Disord. 2012 Mar;14(1):1-11. doi: 10.1684/epd.2012.0482.

Therapy of encephalopathy with status epilepticus during sleep (ESES/CSWS syndrome): an update.


Electrical status epilepticus in sleep (ESES)/continuous spikes and waves during slow sleep (CSWS) is an age-related, self-limiting disorder characterised by epilepsy with different seizure types, global or selective neuropsychological regression, motor impairment, and a typical EEG pattern of continuous epileptiform activity for more than 85% of non-rapid eye movement (NREM) sleep. Although the first description of ESES/CSWS dates back to 1971, an agreement about the optimal treatment for this condition is still lacking. ESES/CSWS is rare (incidence is 0.2-0.5% of all childhood epilepsies) and no controlled clinical trials have been conducted to establish the efficacy of different antiepileptic drugs; only uncontrolled studies and case reports are reported in the literature. Treatment options for ESES/CSWS include some antiepileptic drugs (valproic acid, ethosuximide, levetiracetam, and benzodiazepines), steroids, immunoglobulins, the ketogenic diet, and surgery (multiple subpial transections). In this study, the comparative value of each of these treatments is reviewed and a personal therapeutic approach is proposed.

When do you treat Benign epilepsy with centric temporal spikes-Rolandic epilepsy?

Epilepsy Behav. 2015 Feb 9;44C:117-120. doi: 10.1016/j.yebeh.2015.01.004. [Epub ahead of print]

Benign childhood epilepsy with Centro-Temporal spikes (BCECTSs), electrical status epilepticus in sleep (ESES), and academic decline - How aggressive should we be?


Since many of the children with BCECTSs display electrical status epilepticus during sleep and many present with different comorbidities, mainly ADHD and behavioral disturbances, clinicians are often confronted with the dilemma of how aggressive they should be with their efforts of normalizing the EEG. We conducted a retrospective study by screening medical records of all consecutive patients with BCECTSs, spike-wave index (SWI) >30%, and ADHD/ADD that were evaluated in our pediatric epilepsy service and were followed up for at least two years. Patients with neurocognitive deterioration detected by formal testing were excluded. A total of 17 patients with mean age of 6.9years at BCECTS diagnosis were identified. The patients' mean SWI was 60% and that dense electrical activity lasted 1.5years on average (range: 1-4.5years). Six children were formally diagnosed with learning disabilities in addition to ADD/ADHD. All of them were treated with an average of three antiepileptic medications, mainly for the purpose of normalizing the EEG, but none of them was treated with steroids or high-dose diazepam. The mean duration of follow-up was 5.5years. A cognitive or behavioral deterioration was not detected in any of them. Our data suggest that when treating a child with BCECTSs, high SWI, and school difficulties, the most critical parameter that determines the necessity of using second-line antiepileptic agents such as steroids or high-dose diazepam is a formal psychological evaluation that proves cognitive (I.Q.) decline. Otherwise, these agents may be avoided.